MOOSE JAW — A Moose Jaw mother is bringing attention to a rare and little-known medical condition by organizing a local walk and rallying the community for awareness and support.
On Saturday, May 17, residents are invited to Wakamow Valley for the inaugural Walk for Neurofibromatosis (NF) Awareness, an event inspired by Hazel, the young daughter of Moose Jaw resident Catelyn Gadd. Hazel was recently diagnosed with Neurofibromatosis, a group of genetic disorders that cause tumours to form on nerve tissue.
“This is the first time we’re doing the walk,” Gadd said. “We’re hoping to bring the community together and shine a light on what families like ours are going through.”
The walk will be held at Kiwanis River Park in Wakamow Valley, starting at 6:30 p.m. Registration is $20 per person and can be paid with cash on-site.
Participants are encouraged to bring family and friends, with a short loop around the park planned for the walk, followed by a gathering and opportunity to learn more about the condition. All proceeds will go toward initiatives aimed at accelerating treatment options for Canadian families.
“We just want people to learn about it, share it, and support it however they can,” said Gadd. “There are kids like Hazel all across the country, and right now, there aren’t enough resources for them.”
As part of the push for awareness, Mayor James Murdock signed an official proclamation declaring May 17 as Neurofibromatosis Awareness Day in the city. Gadd said the recognition is a powerful step in raising the profile of the disorder and the impact it has on families.
“It means so much to have the city recognize what we’re trying to do,” she said. “Being seen and being supported — it’s a huge part of why we’re doing this.”
Neurofibromatosis encompasses three types: NF1, NF2, and schwannomatosis. NF1, the most common, affects approximately one in 3,000 individuals and is characterized by skin changes, bone deformities, and tumour growth along nerves. NF2 and schwannomatosis are rarer and often involve tumours that can lead to hearing loss and chronic pain.
“In Canada, there’s currently no dedicated clinic for Neurofibromatosis,” Gadd noted. “(Families must) travel to the U.S. for treatment. That’s why raising funds and awareness is so important.”
The event is also part of a broader grassroots movement across Canada to establish the country’s first dedicated Neurofibromatosis clinic in Ontario.
“This is just the beginning,” said Gadd. “With more awareness, we hope to build support for a clinic here in Canada. And every step, every dollar raised, helps make that vision more real.”
Those unable to attend in person can still donate to the Children’s Tumour Foundation online at CTF.org.
“It’s not just about one day,” said Gadd. “It’s about building a future where families don’t feel alone, where they have somewhere to go for help, and where kids like Hazel can thrive.”
